Do you currently experience worrisome tremors? If so, I invite you to watch my short video below and listen to my 30 minutes interview with Bobby Krause, founder of Be Still Foundation, on his triumph over tremors.
Bobby Krause discusses how Focused Ultrasound changed his life below:
Below is Bobby’s story
As a college athlete turned sales executive and father of two, I loved to live large and make the most of every moment. This was until a “nervous tick” began to occur in my left arm. After a series of doctor’s appointments, MRI’s and a pivotal appointment with a neurologist in 2016, my and my family’s lives were forever altered when I was diagnosed with young onset Parkinson’s Disease at the age of 42.
After my diagnosis, the harmless tick evolved into a relentless, debilitating tremor throughout the left side of my body. These tremors caused constant pain, embarrassment and a significant decline in my quality of life. I struggled to focus on life happening around me. I could not conduct business meetings without distraction. The tremors escalated greatly under the pressure of intense situations like coaching my son’s basketball games. I wondered how life could go on this way.
My Triumph Over Tremors
In 2020, a glimmer of hope emerged when I learned of clinical trials underway for a groundbreaking tremor treatment, called Focused Ultrasound. Thanks to an incredibly generous employer, along with an exceptional medical team at the University of Penn, my life-changing therapy was scheduled for June of 2022.
June 9, 2022, is a day I will never forget. While traveling to the University of Penn for my Focused Ultrasound therapy, I was full of hope, yet I could see my tremors intensify and feel my muscles tighten from the stress of it all. Little did I know, the profound physical and emotional impact the next two hours in the MRI tube would have on my life.
Laying fully conscious on the MRI table was surreal and incomprehensible. In real time, I communicated with the medical staff how and what I was feeling during the five sonication’s I underwent that day. While inside the tube during the third sonication, for the first time in nearly a decade, my body surrendered the tremors, my muscles eased, and the rigid tension melted away and I was finally able to…Be Still!
I’ve had the distinct honor of sharing my journey with Parkinson’s Disease and my Focused Ultrasound therapy experience at prestigious venues like Capitol Hill, Princeton University and within communities such as Rock Steady Boxing. Through these interactions, I’ve witnessed firsthand the hope my story instills. However, this optimism is tempered by the lack of awareness, availability and financial hurdles many face in accessing this treatment. These exchanges with those full of hope but greatly in need, are what sparked the start of Be Still Foundation.
Below are listed the questions I ask him during the interview as he discusses his triumph over tremors.
-
- Tell me about yourself Pre-Parkinson
- When were you officially diagnosed with Parkinson’s and what were your symptoms?
- How did you initially treat your symptoms and what were the pros and cons of those treatments?
- How and when did you become aware of Focused Ultrasound?
- Once you learned about focused ultrasound what were your next steps with your family and medical team?
- Can you take me through the day of your scheduled treatment?
- What side effects did you experience from the procedure?
- I understand it’s now been two years since your procedure, are you experiencing tremors again?
- What led you to create the Be Still Foundation?
- For those interested how can they support the Be Still Foundation?
Robert Rodgers PhD
Founder 2004
Parkinsons Recovery
Road to Recovery from Parkinsons disease
